Future studies aiming to leverage individual-level social media data should explore alternate populations or means of sharing social media data. Despite working with a third-party developer to customize an app to implement safeguards for privacy, data privacy remained a key concern in these women.
The low participation rate suggests that obtaining individual-level Facebook data in a cohort of middle-aged and older women may be challenging.Ĭonclusions: In this cohort of midlife and older women who were actively participating for over three decades, we were largely unable to obtain permission to access individual-level data from participants’ Facebook accounts. On our exit survey, the reasons most commonly reported for not participating were concerns regarding data privacy and hesitation sharing personal Facebook posts. This low participation rate was observed despite modifying our protocol between waves of recruitment, including by (1) excluding active health care workers, who might be less available to participate due to the pandemic, (2) developing a Frequently Asked Questions factsheet to provide more information regarding the protocol, and (3) simplifying the instructions for using the app.
#Digime facebook download download
Few women signed the consent form (n=52), and only 3 used the app to download and transfer their Facebook data. Results: We invited 309 women to participate. We included an exit survey for those who chose not to participate in order to gauge the reasons for nonparticipation. Women were selected if they reported on the 2017-2018 questionnaire that they regularly posted on Facebook and were still active cohort participants. In 2020, we invited a subset of the 18,519 NHSII participants (aged 56-73 years) via email to participate.
#Digime facebook download software
Since privacy is a critical concern when collecting individual-level data, we partnered with a third-party software developer,, to enable participants to obtain their own Facebook data and to send it securely to our research team. Facebook does not share data readily therefore, we developed procedures to enable women to download and transfer their Facebook data to cohort servers (for linkage with other study data they have provided). Methods: This study was conducted with participants in the Nurses’ Health Study II (NHSII), which was initiated in 1989 with biennial follow-ups. Objective: We evaluated the feasibility of obtaining Facebook data from a large ongoing cohort study of midlife and older women, which may be used to assess psychological functioning efficiently with low cost.
Investigators are increasingly interested in using social media as a novel and convenient platform for obtaining information rapidly in large populations. Most research in this area relies on self-reported assessments of psychological factors, which are difficult to scale because they may be expensive and time-consuming. Harvard Medical School and Harvard Pilgrim Health Care InstituteĮmail: Psychological factors (eg, depression) and related biological and behavioral responses are associated with numerous physical health outcomes.
0 kommentar(er)
